Program in English
Narrative medicine can develop health care!
Conference in Stockholm November 24, 2016
Thursday, November 24, 2016, at Eugeniahemmet, Karolinska University Hospital in Solna, at 9.00 (am) – 16.00 (4.00 pm)
Professor Rita Charon, MD and Ph.D., physician, literary scholar and author of ”Narrative Medicine – Honoring the Stories of Illness,” from Columbia University in New York City, USA will be our keynote speaker.
The conference will illuminate what narrative medicine is, from different perspectives, and discuss the importance of stories in health care: ethics, personal centered care, competence and skill, work methods and organization, patient safety and health care documentation.
The initial part of the conference (9: 30-12: 00), with Rita Charon’s lecture and a panel discussion, will be in English. The panel talk, led by Professor Ola Sigurdson, Centre for Culture and Health, University of Gothenburg, include:
Astrid Seeberger, Professor, Karolinska Institutet
Eva Helmersson, lecturer and Life Consultant, Ingarö
Valdemar Erling, physician at Kungälv Hospital
Christer Petersson, general practitioner, Växjö
Katarina Bernhardsson, literary scholar, Lund University
During the afternoon, starting 13.00, there will be three parallel sessions in Swedish and one in English, with introductory presentations and opportunity for interaction and in depth discussion.
- Narrative in everyday clinical practice (Moderator: Valdemar Erling) (Swedish).
Importance and possibilities of narrative in interaction between patient and caregiver, related to eg person-centered care, narrative skills and work organization. (Swedish)
- Story, science and practice – Christer Petersson
- Story as a knowledge instrument – Astrid Seeberger
- Narrative skills – how can they be developed? – Katarina Bernhardsson
2. Patient safety – the story’s significance for diagnostics, patient involvement, risk management. (Swedish)
- The story’s importance for diagnosis, treatment, participation and continuity – Hans Rutberg, Professor, Linköping University, Chairman of Comity for Safe Care, the Swedish Society of Medicine.
- What I want to tell you – the patient’s perspective – Eva Helmersson
- Who owns the patient’s story – ethical perspective – Ola Sigurdson
3. Narrative in health care documentation (Moderator: Magnus Fogelberg).
How can stories and narrative details be part of health care information? What does, for example, the patient’s own direct access to the Journal online? How does the standardization of information, for example by ”archetypes” and templates affect the content of narratives? (Swedish)
- What do patients and carers want and need to document? – Rose-Mharie Åhlfeldt, Associate Professor of Information Technology, University of Skövde
- How can electronic health record (EHR) structure and function support stories? – Erik Sundvall, PhD in medical informatics, Region Östergötland and Linköping University
- For whom and what purposes do we keep health care documentation? Panel Discussion
4. Design of eHealth – what can we learn from patient stories? (Moderator: Maria Hägglund).
eHealth has the potential to revolutionize the way health care and prevention is provided, shifting the balance of power and responsibility from healthcare professionals to patients and citizens. Yet, many applications developed for patients are either designed from a healthcare provider’s perspective, e.g. applications to collect patient reported outcomes, or stand-alone health applications, e.g. mobile apps for activity tracking. A more balanced way for initiating eHealth service design taking patients’ experiences of the patient journey into account will be discussed in this interactive workshop. (English)
- Patients’ experiences as input to eHealth design – Maria Hägglund, PhD, Health Informatics Centre, Karolinska Institutet
- Design challenge (led by Maria Hägglund)
The conference will conclude with feedback – in English – from the parallel sessions and information about the newly formed Swedish Society for Narrative Medicine.
The participation fee – 990 kr – includes lunch and morning and afternoon refreshments. Registration and payment (card or invoice) via Dinkurs. Do not forget to specify which of the parallel sessions you want to attend!